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Mya’s First Surgery + One Year Later Update
Well, here we are. A year later and I am finally getting to this. But, better late than never right? Life has been busy, lots has happened, but I am finally here to write it all out. Especially for my amazing BPES community, ya’ll want details and I am here to give them. The amount…
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Mya and Adi’s genetic conditions
My two perfect girls ❤ That is exactly what they are, perfect! I will forever remind them of this. However, we did go through a few bumps and it’s something we are going to have a conversation with each of the girls as they get older. Adi is a carrier of Cystic Fibrosis, I shared…
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From Not Wanting to Live to Happily Ever After
“I would pray a car would hit me so I would not have to live like this anymore” “He saved my life and I thank God for him every day“ This is a hard one to write. Mostly because it involves my past and as much as I have already forgotten about it, it still…
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10.18.22 update – Mya’s journey with Blepharophimosis Syndrome
First off, I want to thank everyone from the bottom of my heart who continuously reach out to me and check in on our sweet girl. I use this space to write out her journey, which it’s going to be a long one. Last Tuesday, we had our follow up with the eye specialist at…
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Mya’s journey with Blepharophimosis syndrome
“When is she going to open her eyes?” “Why are her eyes so little?” “Did she open her eyes yet?” We know people did not mean well when they would ask those questions, but they still hurt, because we had no idea how to answer them. So, this is not the easiest story to write…
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Ewelina Dalka - Mom Lifestyle Blog 