Tag: blepharophimosis
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Mya’s First Surgery + One Year Later Update
Well, here we are. A year later and I am finally getting to this. But, better late than never right? Life has been busy, lots has happened, but I am finally here to write it all out. Especially for my amazing BPES community, ya’ll want details and I am here to give them. The amount…
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Mya’s journey with Blepharophimosis syndrome
“When is she going to open her eyes?” “Why are her eyes so little?” “Did she open her eyes yet?” We know people did not mean well when they would ask those questions, but they still hurt, because we had no idea how to answer them. So, this is not the easiest story to write…