Tag: genetic testing

• Mya’s journey with Blepharophimosis syndrome

  “When is she going to open her eyes?” “Why are her eyes so little?” “Did she open her eyes yet?” We know people did not mean well when they would ask those questions, but they still hurt, because we had no idea how to answer them. So, this is not the easiest story to write…

  ewelinadalka

  August 20, 2022

  Uncategorized

  2 months old, blepharophimosis, BPES, genetic testing, momblogger